Tired

The babies will be 7 weeks old in a couple of days. I can’t believe we’re surviving this! I'm tired.The past 7 weeks have been the most trying and exhausting days of my life. On facebook, I read people’s statuses and look at their pictures and get jealous that they are living a “normal” life. I know things will never be the same, but at least we will have our new normal when the babies come home.  It’s hard not to feel alone in this journey even though we have people all around us. It’s a very unique situation that not many people can relate to. I never thought I’d be experiencing it. I know it’s made me a stronger and more patient person, but I still don’t understand why it had to happen to us… to our babies.

The babies are doing well. The morning I last blogged, I hadn’t gotten my morning update from Dennis, yet. A little while after I posted, he called me and told me that both of the babies had had a rough night. Violet was back on the cannula and Cameron was having heart rate drops. Hearing these things was difficult and made me anxious to be with them for the day. When I got to the hospital I felt more alone than I had in weeks. Luckily, I have an awesome mom who came up to spend the rough day with me. The babies dsatted a lot and Cameron had a heart rate drop or two. Their monitors were going off all day! It was awful. Those monitors are enough to make you crazy, that's for sure! That seemed to be the worst of it, though. The babies are doing well today.

Yesterday marked the day that I would’ve been exactly 33 weeks pregnant. I don’t think I’ll ever get over how early these babies came. However, considering everything, we really are very lucky. We hit a HUGE milestone today when Violet had her first BOTTLE!!! Bottle feeding starts when the babies are doing well with their breathing and are showing signs that they can handle the bottle.  She took 10 mls out of her 36 ml feeding. She did so well and we were so proud of her. I couldn’t stop crying through the whole thing. Bottle feeding is a huge step closer to coming home. For now, she’s only going to be trying one bottle a day and we’ll slowly work our way up depending on how she tolerates them. At this rate, there’s a very good chance she’ll be coming home before Cameron. Our sweet boy is still on anywhere between 32 and 38 percent oxygen with 2 liter flow of oxygen. They’ve tried to wean him down a couple of times, but he doesn’t seem to like it very much. Hopefully, within the next few days he’s able to tolerate the weaning. We’d really like to see that oxygen lowered. He is not ready to bottle feed with his breathing issues. He is, however, getting a lot bigger. Cameron is now about 4 lbs 7oz and Violet is 3 lbs 14 oz. They’re really doing a nice job with their weight gains.

I’m not sure how we’ll handle Violet coming home before Cameron… especially if it’s before the holidays. The whole thing breaks my heart. While I want her home more than anything in the world, I feel sick thinking about taking her home and leaving him there. First, I’m not sure how I would take care of her and go spend time with him and second I HATE the idea of him being in the hospital by himself and not here with us. Our family won’t be complete until we are all here. I just can’t wait much longer!!!

Best Moving Day Ever!

Yesterday was one of the most precious days of my entire life. As I sat kangarooing Cameron, our favorite nurse, Megan, came over to me and asked, “How do you think Cameron would like a change of scenery?”. I knew exactly what she meant and I got excited. It was FINALLY time for the twins to be moved next to each other!!! It’s been 5 weeks tomorrow and the twins haven’t been near each other. Within minutes, they began moving the bed that was currently next to Violet and started getting Cameron ready for the big move.

Once he was in his new spot, we couldn't take the smiles off of our faces. Dennis was kangarooing Violet so he was able to watch everything happen, as well. Then, even though I’d held Cameron for the day already, Megan took him back out and we were able to take our first FAMILY picture. Needless to say, my eyes are ridiculously puffy because I couldn’t stop crying. We waited so long for that moment and it was finally there. We held them there for a few minutes just soaking everything in when Megan said, “Okay, now I’m really going to push it”. She took Cameron from me and put him in Dennis’s arms. Dennis was holding our two babies and they were as close as they had ever been since being born. For us, it was absolutely incredible. I loved seeing them together. It was one of those few times in life when you picture something in your head over and over and then when it actually happens it’s even BETTER than you’d imagined. We all know that doesn’t happen very often. It was absolutely beautiful and it’s something I will never, ever forget. When I’m 100 years old, and I’m about to peacefully die in my sleep (because duh, that WILL be how it happens), I will have the images of last night running through my mind.

 

 

Violet slept through pretty much the entire thing. This was a little surprising to us because she’s our little party girl. She always has to try to stay awake when she knows someone is there. But, she was out like a light for the big move. Cameron, who sleeps through everything, was WIDE awake. He was the most alert I’ve ever seen him. His eyes were big and it looked like he just kept trying to figure out what the hell was going on. They were both so cute. We kept saying that Cameron was telling Violet she can’t boss him around anymore just because they are close again. I told Violet she can’t be a bossy pants, but I don’t think she’s going to listen. I told them both to look out for each other and to keep each other company when Mommy and Daddy aren’t there. The move actually made leaving a little easier because I knew they were so close. They’re finally together again. While they’re still in their incubators, it shouldn’t be too long before they can come out and be in NICU cribs. Cameron is wearing clothes and Violet will probably come off high flow and move to regular nasal cannulas soon. I’ll say this until the day I die (which will be when I’m 100): my babies are miracles. I love them more than anything in this world and I can’t wait to get them home. Miracles do happen.

One Month Old!

Our babies turned one month old yesterday! In a way it seemed to go by fast, but then I think about being in the hospital and the day they were born, and the first time I saw them in the NICU and it feels like a lifetime ago. I also think about the fact that that means we’re only about a third of the way through this (hopefully!).  It’s so strange.

We made it through Thanksgiving! One of the main reasons we were able to make it through is because when we arrived at the hospital, Cameron was on the high flow nasal cannulas! We were so happy. Violet was taken of the cpap earlier than Cameron, but this little man seems to be catching right up. They are both doing so well.  Every day that goes by is one day closer to bringing those little angels home.  They are making this so much easier on me by fighting so hard and progressing as they are. I’m so proud of them and pray that they continue to get bigger, stronger, and healthier every day.

With the holiday season starting, the emotional roller coaster is hitting me again. I’m not going to be decorating or putting up my tree this year. I’m not anti-Christmas or holidays or being happy or anything like that. I just know that every time I’d look at my tree, instead of getting that warm and cozy feeling, it would just make me miss the babies more. I can’t imagine missing them even more than I do now.  It’s getting harder to leave rather than easier and I think it’s because they are starting to really seem like BABIES. They open their eyes so much more and respond to our voices. Holding them is the most amazing feeling in the world because they are so content and warm and snuggly. It’s perfect. I never want it to end while it’s happening. I have to admit, though, it does get quite uncomfortable for my neck because I can’t help but stare at them the entire time.  

Everyone keeps asking when they will be home. The fact is, we don’t know. We don’t know because they are preemies. Today, they should be 31 weeks old… GESTATIONAL age. Instead, they are one month old. It’s absolutely insane. I know there are still so many what ifs and so many possible things that can happen, but I have faith that they will pull through. They are such miracles. We are so lucky that these babies survived! And now they are doing so awesomely.  One of the nurses said, “it’s okay to be happy, but you know you have to be cautious… you can’t trust a preemie”. After she walked away, I whispered to Cameron, “I trust you. I trust you and your sister”.  I hope that gave them some extra fight.

I can’t wait until the day I feel whole again. My chest feels empty and my mind is always thinking that I’m missing something. I know exactly what those somethings are and soon they’ll be at home with me, Dennis, and Ivy. Keep sending the love, prayers and support.